Tag: Chronic Illness
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HSCT Research & Resources

There is an indescribable feeling of connection and peace in talking to someone with your shared experience.
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Why I Write

I discovered, the more I opened up, the more the people in my life surprised me with their understanding and support. My family, friends, coworkers and kind Midwestern strangers continue to surprise me in ways I never imagined.
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Two Days of Testing

These days were brutal, emotional and totally worth it. The appointments, tests and blood draws are to ensure the rest of my body can withstand the chemo.
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The HSCT Process

Hope. I don’t use the word lightly. since my diagnosis nearly nine years ago I have waited to get worse and I’ve seen that come to fruition rapidly in the last three years. I know this is going to be hard but I am hopeful.
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Bone Marrow Transplant… What?

This is not a cure. The goal of hematopoietic stem cell transplant (HSCT) is to reset the immune system and stop inflammation that contributes to MS.
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Happy Birthday! You get MS.

After a four-hour MRI, a spinal tap, and countless neurological exams, I was officially diagnosed. I went from thinking I was a healthy and active woman to being told I now have a lifelong diagnosis for a disease with no cure.