Hi, I’m Carolyn and My Chronic Library is a personal blog detailing my life and learnings of living with MS, my experience undergoing and recovering from an experimental bone marrow transplant (HSCT), my opinions and recommendations for navigating healthcare in the U.S., and all things reading and books.
I endeavor to provide lessons for the chronically ill and impossibly curious. I’m navigating disability in an ableist world and trying to make an impact by helping others through education and advocacy.
I’m a voracious reader, avid traveler, and singer of show tunes. Four years in means there’s a lot of content here. If you don’t fancy scrolling, ask me a question directly!
Read about my former self as well as my thoughts on releasing body shame and comparison in health.
LATEST POSTS
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Healing Perfectionism
For whatever reason, in this body, in this version of me… I don’t want to be perfect. I’m figuring out that illness is driving me back to myself. I am allowed joy in my present and my future is worth significant investments.
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The Privilege of Movement & Access
I can’t begin to explain (or at least not adequately or well) what it feels like when things in the body just stop working. Think of me and do a few things because you can… you get to.
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Memory Dividends
Experiences yield dividends and I want to share a few of my memory investments that continue their returns year-over-year.
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Life Lately: Closing Out 2025
There were a lot of things that occurred in 2025 that were NOT on my bingo card. Looking back however, the year is full to the brim with so much joy, connection, life, and love.
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The Fallacy of Primary Care in Chronic Illness
Most people look to healthcare – to doctors – for the answers. I enter all encounters knowing answers don’t exist.
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What I Wish I Knew After an MS Diagnosis
12 years of living with MS and there’s a wealth of information I wish I had sooner. Sharing my list of what I wish someone told me at the beginning.
DON’T MISS OUT ON MY MUSINGS!
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My Chronic Library 