Hi, I’m Carolyn and My Chronic Library is a personal blog detailing my life and learnings of living with MS, my experience undergoing and recovering from HSCT, my opinions and recommendations for navigating healthcare in the U.S., and all things reading and books.
I endeavor to provide lessons for the chronically ill and impossibly curious. I’m navigating disability in an ableist world and trying to make an impact by helping others through education and advocacy.
I’m a voracious reader, avid traveler, and singer of show tunes.
Read about my former self as well as my thoughts on releasing body shame and comparison in health.
LATEST POSTS
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Life Lately: Closing Out 2025
There were a lot of things that occurred in 2025 that were NOT on my bingo card. Looking back however, the year is full to the brim with so much joy, connection, life, and love.
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The Fallacy of Primary Care in Chronic Illness
Most people look to healthcare – to doctors – for the answers. I enter all encounters knowing answers don’t exist.
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What I Wish I Knew After an MS Diagnosis
12 years of living with MS and there’s a wealth of information I wish I had sooner. Sharing my list of what I wish someone told me at the beginning.
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Life Lately: June 6, 2025
When asked how I am doing, are you ok with the answer of “living” and that being not only an acceptable answer, but a damn good one?
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My Complicated, Needy, Irrational, and Humbling Relationship
The doctor/patient relationship will never be equal. I need him, but I don’t want to need him. I am so lucky to have found him, but I wish I never met him. What a phenomenally unfair burden to place on another person.
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Understanding My Lost Anticipated History
I said, “I was healthy until the moment a doctor told me I wasn’t. And nothing prepares you for that.” He replied, “Carolyn, we are all one test away.” It’s cruel really, how your world changes in an instant but the effects are infinite.
DON’T MISS OUT ON MY MUSINGS!
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My Chronic Library 