Tag: Multiple Sclerosis
Mirror, mirror on the wall
When I look in the mirror, it’s like another person stares back at me. The person I see and the person I am are incongruous.
The change 6 months can bring
At the start of 2022, I had never heard of HSCT. A year post transplant, I’m ever so curious to see where I will be six months from now.
So did the transplant work?
Through tears of defeat and tears of joy, body degradation and elation, and one million new experiences, I’m happy, I’m content, I’ve found a small amount of peace. The future is full of possibility.
Am I stable?
What was good news for my doctors was confusing and demoralizing news for me. While my MRIs were stable, I was declining and fast.
Back to Start
I was prepared to feel like a lab rat in this process. I was not prepared to feel all alone or be buried in red tape and insurance denials. I was not prepared to have to start again.
Rehab, Health Esteem & Other Musings
I will crawl, claw, and fight to improve my walk, to build strength, to be independent. I may have been kicked back to the starting line by shingles, but I will not stop trying.
The Me I Mourn
I have hours to think and to write, alone in my hospital bed. I find my mind wandering to the versions of me that are now lost; both from the past and also looking into the future.
Guest Author: A Roller Coaster of Recovery
I assume by now you have read Carolyn’s new blogs about the month of February but I would like to sum it up in a few words: “What the hell?” As a parent, I just want to fix things.
The F Word
F is for fall, one of those key medical metrics that hospitals care about. I’ve been forced to come to terms with recent falls and how they impact my health and care.
Depths of Despair
My mobility is not me. I work every day to understand that simple sentence. But I write now, from a place of darkness, of loss, of profound grief.