Tag: MS
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And We’re Off!
Yesterday I started my day with labs and an appointment with my oncologist before heading to a different location for the insertion of my chest catheter in preparation for HSCT.
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Prepping My Freezer
I’ve spent the weeks leading up to my stem cell transplant harvest prepping my freezer. My increased fatigue and decreased mobility and stability force me to be selective what I cook and when.
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Update on the 7T MRI
Research is important to further our understanding and treatment of disease, but this scan was brutal. Would I do it again for research? Yes. Was it “well tolerated” as they say in medicine? Decidedly no.
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Emotional Volatility
I’m ok… I think I’m ok… well, maybe I’m not ok. Everything feels too heavy, too important, too intense right now. I’m productive and high functioning, but I guess my goal in writing this is to say it’s ok not to be. Just be.
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7T MRI & Research for MS
Cleveland Clinic is one of about 50 institutions worldwide with a 7T MRI — and one of a select few that use it in close relation with an active hospital. And I’m getting one.
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Guest Author: How To Provide Support
No matter the situation, friendships change and evolve. The question is, how much are you open to changing and evolving with them?
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Dating & Doctors
I strongly believe finding the right doctor is akin to dating. It’s ok to not like your first doctor and play the field.
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Zzzzzzz: Sleep & MS
I have a body that can no longer push through and keep going. I’m physically incapable. When I don’t sleep — no matter the reason — my MS symptoms flare.
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HSCT Research & Resources
There is an indescribable feeling of connection and peace in talking to someone with your shared experience.
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Why I Write
I discovered, the more I opened up, the more the people in my life surprised me with their understanding and support. My family, friends, coworkers and kind Midwestern strangers continue to surprise me in ways I never imagined.
My Chronic Library 