Category: About Me
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Life Lately: Closing Out 2025
There were a lot of things that occurred in 2025 that were NOT on my bingo card. Looking back however, the year is full to the brim with so much joy, connection, life, and love.
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What I Wish I Knew After an MS Diagnosis
12 years of living with MS and there’s a wealth of information I wish I had sooner. Sharing my list of what I wish someone told me at the beginning.
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Life Lately: June 6, 2025
When asked how I am doing, are you ok with the answer of “living” and that being not only an acceptable answer, but a damn good one?
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My Complicated, Needy, Irrational, and Humbling Relationship
The doctor/patient relationship will never be equal. I need him, but I don’t want to need him. I am so lucky to have found him, but I wish I never met him. What a phenomenally unfair burden to place on another person.
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Understanding My Lost Anticipated History
I said, “I was healthy until the moment a doctor told me I wasn’t. And nothing prepares you for that.” He replied, “Carolyn, we are all one test away.” It’s cruel really, how your world changes in an instant but the effects are infinite.
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An Interview with my Former Neurologist
Listen to a one-on-one interview with my former neurologist and read about what I’ve learned in my dual role as a patient and employee of Cleveland Clinic. I reflect on my physical decline due to MS, the importance of advocating for oneself as a patient, and my heartfelt gratitude for the medical team I’ve partnered…
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Understanding Disability Disclosure in the Workplace
The disability experience is isolating, scary, and intimidating. While my experience is mine alone, I’ve learned a few things along the way. Disclosure, choosing when to share and who to trust, is multifaceted and there is no right answer. But a little planning is better than none.
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Armor
I’m working really hard right now to think of my body as functional, beautiful, and perfect in its imperfections. I gave my body to science and I’m trying very hard to get it back.
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Book Lover’s Paradise: Reviews, Recommendations, and Must-Have Items
For better or worse, my personality is more than 50% comprised of the last book I read. I’ve read 55 books so far this year. Read on for a recent round up and some favorite reading accessories.
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My Village
We have all heard the phrase, “it takes a village,” but never has a phrase been more apt to encompass my life including my gratitude, my luck, my love of the street I live on and the friends and neighbors who have turned into chosen family.
My Chronic Library 