Tag: hospital stay
The change 6 months can bring
At the start of 2022, I had never heard of HSCT. A year post transplant, I’m ever so curious to see where I will be six months from now.
So did the transplant work?
Through tears of defeat and tears of joy, body degradation and elation, and one million new experiences, I’m happy, I’m content, I’ve found a small amount of peace. The future is full of possibility.
Back to Start
I was prepared to feel like a lab rat in this process. I was not prepared to feel all alone or be buried in red tape and insurance denials. I was not prepared to have to start again.
Rehab, Health Esteem & Other Musings
I will crawl, claw, and fight to improve my walk, to build strength, to be independent. I may have been kicked back to the starting line by shingles, but I will not stop trying.
The F Word
F is for fall, one of those key medical metrics that hospitals care about. I’ve been forced to come to terms with recent falls and how they impact my health and care.
Depths of Despair
My mobility is not me. I work every day to understand that simple sentence. But I write now, from a place of darkness, of loss, of profound grief.
Three Things My Doctors Said
I have three specific encounters with three extraordinary doctors that shaped who I am as a patient as well as what I know I need from the doctor/patient relationship.
Reflecting Back & Looking Forward
I am six months post transplant and full of hope and gratitude. Take a moment to thank your beautiful, wonderous, amazing, incredible and unique body.
I asked my followers-turned-friends if they had any residual questions about HSCT or my MS journey. Here’s a curated Q&A.
My big list of how to help (because we need it)
Don’t ask the sick or recovering friend how to help, tell them your three ideas and let them choose.