Tag: hospital stay
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The change 6 months can bring
At the start of 2022, I had never heard of HSCT. A year post transplant, I’m ever so curious to see where I will be six months from now.
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So did the transplant work?
Through tears of defeat and tears of joy, body degradation and elation, and one million new experiences, I’m happy, I’m content, I’ve found a small amount of peace. The future is full of possibility.
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Back to Start
I was prepared to feel like a lab rat in this process. I was not prepared to feel all alone or be buried in red tape and insurance denials. I was not prepared to have to start again.
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Rehab, Health Esteem & Other Musings
I will crawl, claw, and fight to improve my walk, to build strength, to be independent. I may have been kicked back to the starting line by shingles, but I will not stop trying.
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The F Word
F is for fall, one of those key medical metrics that hospitals care about. I’ve been forced to come to terms with recent falls and how they impact my health and care.
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Depths of Despair
My mobility is not me. I work every day to understand that simple sentence. But I write now, from a place of darkness, of loss, of profound grief.
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Three Things My Doctors Said
I have three specific encounters with three extraordinary doctors that shaped who I am as a patient as well as what I know I need from the doctor/patient relationship.
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Reflecting Back & Looking Forward
I am six months post transplant and full of hope and gratitude. Take a moment to thank your beautiful, wonderous, amazing, incredible and unique body.
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HSCT Q&A
I asked my followers-turned-friends if they had any residual questions about HSCT or my MS journey. Here’s a curated Q&A.
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My big list of how to help (because we need it)
Don’t ask the sick or recovering friend how to help, tell them your three ideas and let them choose.