Category: About Me
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What am I living for?
My life is smaller and quieter than it used to be. I don’t have a plan. Maybe for the first time in my life, that’s ok.
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Memory, Time & Moments
One year ago today, I checked-in to the hospital for an experimental bone marrow transplant.
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Mirror, mirror on the wall
When I look in the mirror, it’s like another person stares back at me. The person I see and the person I am are incongruous.
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The change 6 months can bring
At the start of 2022, I had never heard of HSCT. A year post transplant, I’m ever so curious to see where I will be six months from now.
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So did the transplant work?
Through tears of defeat and tears of joy, body degradation and elation, and one million new experiences, I’m happy, I’m content, I’ve found a small amount of peace. The future is full of possibility.
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Rehab, Health Esteem & Other Musings
I will crawl, claw, and fight to improve my walk, to build strength, to be independent. I may have been kicked back to the starting line by shingles, but I will not stop trying.
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The Me I Mourn
I have hours to think and to write, alone in my hospital bed. I find my mind wandering to the versions of me that are now lost; both from the past and also looking into the future.
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The F Word
F is for fall, one of those key medical metrics that hospitals care about. I’ve been forced to come to terms with recent falls and how they impact my health and care.
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Depths of Despair
My mobility is not me. I work every day to understand that simple sentence. But I write now, from a place of darkness, of loss, of profound grief.
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Movement, Energy & the Body
Movement – a word that holds so much joy, so much possibility and for me, sorrow and loss as well.
My Chronic Library 