Category: About Me
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The change 6 months can bring
At the start of 2022, I had never heard of HSCT. A year post transplant, I’m ever so curious to see where I will be six months from now.
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So did the transplant work?
Through tears of defeat and tears of joy, body degradation and elation, and one million new experiences, I’m happy, I’m content, I’ve found a small amount of peace. The future is full of possibility.
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Rehab, Health Esteem & Other Musings
I will crawl, claw, and fight to improve my walk, to build strength, to be independent. I may have been kicked back to the starting line by shingles, but I will not stop trying.
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The Me I Mourn
I have hours to think and to write, alone in my hospital bed. I find my mind wandering to the versions of me that are now lost; both from the past and also looking into the future.
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The F Word
F is for fall, one of those key medical metrics that hospitals care about. I’ve been forced to come to terms with recent falls and how they impact my health and care.
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Depths of Despair
My mobility is not me. I work every day to understand that simple sentence. But I write now, from a place of darkness, of loss, of profound grief.
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Movement, Energy & the Body
Movement – a word that holds so much joy, so much possibility and for me, sorrow and loss as well.
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Three Things My Doctors Said
I have three specific encounters with three extraordinary doctors that shaped who I am as a patient as well as what I know I need from the doctor/patient relationship.
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Life Lately: December 5, 2022
I’m trying each day to get through the day. Short and sweet, that’s what it comes down to; doctor’s visits, vaccines, holidays and new beginnings.
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In sickness and in health… or not
I now have the mental and physical bandwidth to focus on something other than staying alive and fighting for my life. That means shedding light on the other major update in my life: I’m getting divorced.
My Chronic Library 