Category: HSCT
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Chronic Illness-Doing OK-Surviving Barbie
I wanted to be a success story, but I’m realizing I’m just me — unapologetically me. There is so much nuance in chronic illness; we live in the gray area and that unfortunately, is the hardest story to tell. But to me, that’s where the true story lies.
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The Mental Gymnastics of Chronic Illness
I am a mess. But I’ve never been more excited to be messy. My physical and mental health are in constant flux, no two days are the same and it’s exhausting. I guess this is healing? Today, that’s what I’m telling myself.
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Mirror, mirror on the wall
When I look in the mirror, it’s like another person stares back at me. The person I see and the person I am are incongruous.
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So did the transplant work?
Through tears of defeat and tears of joy, body degradation and elation, and one million new experiences, I’m happy, I’m content, I’ve found a small amount of peace. The future is full of possibility.
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Am I stable?
What was good news for my doctors was confusing and demoralizing news for me. While my MRIs were stable, I was declining and fast.
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Back to Start
I was prepared to feel like a lab rat in this process. I was not prepared to feel all alone or be buried in red tape and insurance denials. I was not prepared to have to start again.
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Rehab, Health Esteem & Other Musings
I will crawl, claw, and fight to improve my walk, to build strength, to be independent. I may have been kicked back to the starting line by shingles, but I will not stop trying.
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The Me I Mourn
I have hours to think and to write, alone in my hospital bed. I find my mind wandering to the versions of me that are now lost; both from the past and also looking into the future.
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Guest Author: A Roller Coaster of Recovery
I assume by now you have read Carolyn’s new blogs about the month of February but I would like to sum it up in a few words: “What the hell?” As a parent, I just want to fix things.
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The F Word
F is for fall, one of those key medical metrics that hospitals care about. I’ve been forced to come to terms with recent falls and how they impact my health and care.
My Chronic Library 