Category: MS

• Prepping My Freezer

  

  I’ve spent the weeks leading up to my stem cell transplant harvest prepping my freezer. My increased fatigue and decreased mobility and stability force me to be selective what I cook and when.

  ChronicLibraryCD

  May 6, 2022

  Food, HSCT, MS

  bone broth, chemo, chemotherapy, chicken stock, Chronic Illness, coconut rice, freezer, ginger, HSCT, Ina, Ina Garten, lemon, meal prep, MS, soup

• Update on the 7T MRI

  

  Research is important to further our understanding and treatment of disease, but this scan was brutal. Would I do it again for research? Yes. Was it “well tolerated” as they say in medicine? Decidedly no.

  ChronicLibraryCD

  May 3, 2022

  HSCT, MS

  7t, brain health, Chronic Illness, Cleveland Clinic, hospital, HSCT, medical research, MRI, MS, Multiple Sclerosis, radiology, research, scan

• 7T MRI & Research for MS

  

  Cleveland Clinic is one of about 50 institutions worldwide with a 7T MRI — and one of a select few that use it in close relation with an active hospital. And I’m getting one.

  ChronicLibraryCD

  April 22, 2022

  About Me, HSCT, MS

  7T MRI, Beat MS, Chronic Illness, Cleveland Clinic, clinical trial, CNS, disease progression, doctor, HSCT, lesions, medical research, medicine, MRI, MS, Multiple Sclerosis, PPMS, research, RRMS, SPMS

• Guest Author: How To Provide Support

  

  No matter the situation, friendships change and evolve. The question is, how much are you open to changing and evolving with them?

  ChronicLibraryCD

  April 20, 2022

  About Me, Guest Post, HSCT, MS

  best friends, Chronic Illness, friendship, HSCT, meal planning, MS, Multiple Sclerosis, New diagnosis, support

• Dating & Doctors

  

  I strongly believe finding the right doctor is akin to dating. It’s ok to not like your first doctor and play the field.

  ChronicLibraryCD

  April 14, 2022

  About Me, HSCT, MS

  care team, Chronic Illness, DMT, doctors, HSCT, MS, Multiple Sclerosis, New diagnosis, second opinion

• Hospital Stay Packing List

  

  I’ve compiled a list of a few purchases I recently made as I prepare for a month-long hospital stay for bone marrow transplant.

  ChronicLibraryCD

  April 12, 2022

  Books, HSCT, MS

  Chronic Illness, hospital stay, HSCT, kindle, medical, Multiple Sclerosis, organization, packing tips, preparation, what to pack

• Zzzzzzz: Sleep & MS

  

  I have a body that can no longer push through and keep going. I’m physically incapable. When I don’t sleep — no matter the reason — my MS symptoms flare.

  ChronicLibraryCD

  April 8, 2022

  About Me, Books, MS

  Chronic Illness, insomnia, MS, Multiple Sclerosis, no sleep, side effects, Sleep, Sleep issues and MS

• HSCT Research & Resources

  

  There is an indescribable feeling of connection and peace in talking to someone with your shared experience.

  ChronicLibraryCD

  April 5, 2022

  HSCT, MS

  Chronic Illness, Cleveland Clinic, FDA, healing, HSCT, MS, Multiple Sclerosis, NHS, patience, patient advocacy, podcast, recovery, resources, spotify, talk therapy, vlog

• Why I Write

  

  I discovered, the more I opened up, the more the people in my life surprised me with their understanding and support. My family, friends, coworkers and kind Midwestern strangers continue to surprise me in ways I never imagined.

  ChronicLibraryCD

  April 3, 2022

  About Me, MS

  Ableism, blogging, Chronic Illness, mental health, MS, Multiple Sclerosis, therapy, writing

• Two Days of Testing

  

  These days were brutal, emotional and totally worth it. The appointments, tests and blood draws are to ensure the rest of my body can withstand the chemo.

  ChronicLibraryCD

  March 25, 2022

  HSCT, MS

  blood tests, Bone Marrow Transplant, Chronic Illness, HSCT, insurance approval, Multiple Sclerosis