Tag: chemotherapy
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Speak Up: It’s pay day
A $10,000 refund doesn’t come along every day so today, I’m going to rejoice in this moment, take a calming breath, and appreciate that the outcome was worth the effort.
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Ann Patchett Made My Mind Race
There are books that are fun to read, easy to read, escapism. Then there are books that showcase the brilliance of the writer, the mastery that is writing. Thank you, Ann Patchett for shaping my feelings into clear ideas, for reigniting memories and nostalgic reverie, and for being an unparalleled storyteller.
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Chronic Illness-Doing OK-Surviving Barbie
I wanted to be a success story, but I’m realizing I’m just me — unapologetically me. There is so much nuance in chronic illness; we live in the gray area and that unfortunately, is the hardest story to tell. But to me, that’s where the true story lies.
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Memory, Time & Moments
One year ago today, I checked-in to the hospital for an experimental bone marrow transplant.
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Mirror, mirror on the wall
When I look in the mirror, it’s like another person stares back at me. The person I see and the person I am are incongruous.
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The change 6 months can bring
At the start of 2022, I had never heard of HSCT. A year post transplant, I’m ever so curious to see where I will be six months from now.
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So did the transplant work?
Through tears of defeat and tears of joy, body degradation and elation, and one million new experiences, I’m happy, I’m content, I’ve found a small amount of peace. The future is full of possibility.
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The Me I Mourn
I have hours to think and to write, alone in my hospital bed. I find my mind wandering to the versions of me that are now lost; both from the past and also looking into the future.
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The F Word
F is for fall, one of those key medical metrics that hospitals care about. I’ve been forced to come to terms with recent falls and how they impact my health and care.
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Depths of Despair
My mobility is not me. I work every day to understand that simple sentence. But I write now, from a place of darkness, of loss, of profound grief.
My Chronic Library 