Tag: communication

• Speak Up: The ‘not it’ mentality

  

  This is part three of my episodic retelling of battles fought, questions asked, and lessons learned this calendar year with healthcare and insurance. In this segment I highlight that names are deceiving, few people are helpful, and it takes religious and maniacal follow up, documentation, veiled threats, and a flexible work schedule to get answers.

  ChronicLibraryCD

  December 5, 2023

  About Me, HSCT, MS

  Chronic Illness, Cleveland Clinic, communication, hospital stay, insurance, insurance appeal, life, medical billing, MS, Multiple Sclerosis, now-read-this, patient rights

• Am I stable?

  

  What was good news for my doctors was confusing and demoralizing news for me. While my MRIs were stable, I was declining and fast.

  ChronicLibraryCD

  April 25, 2023

  HSCT, MS

  Chronic Illness, Cleveland Clinic, communication, doctors, HSCT, MS, Multiple Sclerosis, neurodegeneration