Tag: disability
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The Fallacy of Primary Care in Chronic Illness
Most people look to healthcare – to doctors – for the answers. I enter all encounters knowing answers don’t exist.
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Understanding Disability Disclosure in the Workplace
The disability experience is isolating, scary, and intimidating. While my experience is mine alone, I’ve learned a few things along the way. Disclosure, choosing when to share and who to trust, is multifaceted and there is no right answer. But a little planning is better than none.
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Life & OT hacks that just make sense
After multiple bouts of paralysis, I’ve become well-acquainted with occupational therapy and hacking my life. Here are things I recommend for safety, staying active, mobility aids, home adjustments, organization, and cleanliness. These products improve my daily life and help ensure my continued independence.
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Ableism and Universal Design
People with disabilities are the largest minority group in our nation. It is the only minority group that any person can join at any time. The ADA is the bare minimum, not the gold standard. Because adding accessibility options and being smart about design helps everyone.
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What I’m Reading: 2024 thus far
Am I bombarding you with book updates and recommendations? Making up for lost time? Moderately manic in my writing as of late? Obviously, yes. Check out my latest must reads for this year.
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How many therapists is too many?
After years of trial and error, I now have three individuals dedicated to different aspects of my mental health. In comparison to my other medical teams, three seems like a small number. Let me reiterate and say it loudly for those in the back row, MENTAL HEALTH DESERVES YOUR ATTENTION TOO!
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Accessibility For All – put it on the website
Yesterday was an amazing day because after almost eight months of work, Cleveland Clinic published a one-stop-shop for accessibility resources and accessing care at our locations. Don’t presume — specifically in healthcare — that you know what anyone is going through.
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The Disability Tax
There is a disability tax that without invite, attaches to all aspects of your life. People don’t talk about this and probably, unless forced, don’t think about it either. I know I didn’t! There is a loss of personal agency and choice.
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Meaningless Vows
Absent of a vow or a ceremony, I know the people in my life who are here for better and for worse, in sickness and in health, till death do us part and that’s more than enough.
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Convalescing by the sea: My trip to Guernsey
I’ve traveled the world and without a doubt, this vacation was the trip of a lifetime. Guernsey might just be the most beautiful, refreshing, soul soothing, healing, and magical place on earth.
My Chronic Library 