Tag: health
-
The Fallacy of Primary Care in Chronic Illness
Most people look to healthcare – to doctors – for the answers. I enter all encounters knowing answers don’t exist.
-
What I Wish I Knew After an MS Diagnosis
12 years of living with MS and there’s a wealth of information I wish I had sooner. Sharing my list of what I wish someone told me at the beginning.
-
Life Lately: June 6, 2025
When asked how I am doing, are you ok with the answer of “living” and that being not only an acceptable answer, but a damn good one?
-
My Complicated, Needy, Irrational, and Humbling Relationship
The doctor/patient relationship will never be equal. I need him, but I don’t want to need him. I am so lucky to have found him, but I wish I never met him. What a phenomenally unfair burden to place on another person.
-
Understanding Disability Disclosure in the Workplace
The disability experience is isolating, scary, and intimidating. While my experience is mine alone, I’ve learned a few things along the way. Disclosure, choosing when to share and who to trust, is multifaceted and there is no right answer. But a little planning is better than none.
-
Life & OT hacks that just make sense
After multiple bouts of paralysis, I’ve become well-acquainted with occupational therapy and hacking my life. Here are things I recommend for safety, staying active, mobility aids, home adjustments, organization, and cleanliness. These products improve my daily life and help ensure my continued independence.
-
The Not-So-Terrible Twos
Two years have passed since my stem cells were put back in my body to rebuild bone marrow and my immune system, it seems like a lifetime ago and yesterday all at once.
-
That sounds like a female problem
I’ve learned through my four decades on this earth that the general consensus from medical professionals is that they just don’t know when it comes to women’s bodies, women’s health, women’s cycles, and women’s hormones. We’re too individual, complex, unique, tricky, hard, difficult, challenging, erratic, and unpredictable.
-
From OR to AND: A New Place in Healing
I think the medical advice of “year-long recovery” for HSCT is a misnomer. But there is progress and there are things happening that matter to me. I am recovering more quickly, I am lasting longer, my endurance has improved.
-
Reflections on an Unexpected Year
I am letting go of anger. I release the illusion of control. I revel in possibility and the unknown, and I am learning to hold both joy and sadness, acceptance and striving for more, contentment and wanderlust — simultaneously. I am loved. I am safe. I am enough.
My Chronic Library 