Tag: healthcare

• The Fallacy of Primary Care in Chronic Illness

  

  Most people look to healthcare – to doctors – for the answers. I enter all encounters knowing answers don’t exist.

  ChronicLibraryCD

  December 2, 2025

  MS

  Chronic Illness, Cleveland Clinic, Complex health, disability, health, healthcare, HSCT, Illness, life, mental health, MS, Multiple Sclerosis, PCP, Primary Care

• COVID, Paralysis & Deja Vu

  

  Chronic illness is exhausting. When asked how I was doing via text message yesterday, I replied, “Equal parts fine and terrible.” Four years was a good run, but that nasty little bugger finally got me. I joined the masses and tested positive for COVID.

  ChronicLibraryCD

  August 4, 2024

  About Me

  Chronic Illness, covid-19, healthcare, hospital stay, HSCT, MS, Multiple Sclerosis, neurology, patient advocacy

• Guest Author: A Roller Coaster of Recovery

  

  I assume by now you have read Carolyn’s new blogs about the month of February but I would like to sum it up in a few words: “What the hell?” As a parent, I just want to fix things.

  ChronicLibraryCD

  February 25, 2023

  Guest Post, HSCT, MS

  Chronic Illness, Cleveland Clinic, healthcare, HSCT, mom, mom and daughter, MS, Multiple Sclerosis, recovery, rehab

• Three Things My Doctors Said

  

  I have three specific encounters with three extraordinary doctors that shaped who I am as a patient as well as what I know I need from the doctor/patient relationship.

  ChronicLibraryCD

  January 16, 2023

  About Me, HSCT

  advocacy, chemotherapy, Chronic Illness, Cleveland Clinic, disability, doctor, healthcare, hospital stay, HSCT, MS, Multiple Sclerosis, patient

• Dear Kerry: a letter to my Captain

  

  This is an open letter to my transplant nurse, my captain, my friend.

  ChronicLibraryCD

  December 16, 2022

  HSCT, MS

  chemotherapy, Chronic Illness, Cleveland Clinic, friendship, graditude, healthcare, HSCT, letters, MS, Multiple Sclerosis, nurses, thank you