Tag: life
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Life Lately: Closing Out 2025
There were a lot of things that occurred in 2025 that were NOT on my bingo card. Looking back however, the year is full to the brim with so much joy, connection, life, and love.
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The Fallacy of Primary Care in Chronic Illness
Most people look to healthcare – to doctors – for the answers. I enter all encounters knowing answers don’t exist.
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What I Wish I Knew After an MS Diagnosis
12 years of living with MS and there’s a wealth of information I wish I had sooner. Sharing my list of what I wish someone told me at the beginning.
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Life Lately: June 6, 2025
When asked how I am doing, are you ok with the answer of “living” and that being not only an acceptable answer, but a damn good one?
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Understanding My Lost Anticipated History
I said, “I was healthy until the moment a doctor told me I wasn’t. And nothing prepares you for that.” He replied, “Carolyn, we are all one test away.” It’s cruel really, how your world changes in an instant but the effects are infinite.
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Reflections on an Unexpected Year
I am letting go of anger. I release the illusion of control. I revel in possibility and the unknown, and I am learning to hold both joy and sadness, acceptance and striving for more, contentment and wanderlust — simultaneously. I am loved. I am safe. I am enough.
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Speak Up: The ‘not it’ mentality
This is part three of my episodic retelling of battles fought, questions asked, and lessons learned this calendar year with healthcare and insurance. In this segment I highlight that names are deceiving, few people are helpful, and it takes religious and maniacal follow up, documentation, veiled threats, and a flexible work schedule to get answers.
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What am I living for?
My life is smaller and quieter than it used to be. I don’t have a plan. Maybe for the first time in my life, that’s ok.
My Chronic Library 