Tag: mental health
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Life Lately: Closing Out 2025
There were a lot of things that occurred in 2025 that were NOT on my bingo card. Looking back however, the year is full to the brim with so much joy, connection, life, and love.
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The Fallacy of Primary Care in Chronic Illness
Most people look to healthcare – to doctors – for the answers. I enter all encounters knowing answers don’t exist.
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What I Wish I Knew After an MS Diagnosis
12 years of living with MS and there’s a wealth of information I wish I had sooner. Sharing my list of what I wish someone told me at the beginning.
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Life Lately: June 6, 2025
When asked how I am doing, are you ok with the answer of “living” and that being not only an acceptable answer, but a damn good one?
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My Complicated, Needy, Irrational, and Humbling Relationship
The doctor/patient relationship will never be equal. I need him, but I don’t want to need him. I am so lucky to have found him, but I wish I never met him. What a phenomenally unfair burden to place on another person.
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Understanding My Lost Anticipated History
I said, “I was healthy until the moment a doctor told me I wasn’t. And nothing prepares you for that.” He replied, “Carolyn, we are all one test away.” It’s cruel really, how your world changes in an instant but the effects are infinite.
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Understanding Disability Disclosure in the Workplace
The disability experience is isolating, scary, and intimidating. While my experience is mine alone, I’ve learned a few things along the way. Disclosure, choosing when to share and who to trust, is multifaceted and there is no right answer. But a little planning is better than none.
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Armor
I’m working really hard right now to think of my body as functional, beautiful, and perfect in its imperfections. I gave my body to science and I’m trying very hard to get it back.
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The Not-So-Terrible Twos
Two years have passed since my stem cells were put back in my body to rebuild bone marrow and my immune system, it seems like a lifetime ago and yesterday all at once.
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How many therapists is too many?
After years of trial and error, I now have three individuals dedicated to different aspects of my mental health. In comparison to my other medical teams, three seems like a small number. Let me reiterate and say it loudly for those in the back row, MENTAL HEALTH DESERVES YOUR ATTENTION TOO!
My Chronic Library 