Tag: MS

• My big list of how to help (because we need it)

  

  Don’t ask the sick or recovering friend how to help, tell them your three ideas and let them choose.

  ChronicLibraryCD

  October 27, 2022

  HSCT, MS

  chemotherapy, Chronic Illness, Cleveland Clinic, family, friendship, help, hospital stay, housework, HSCT, MS, Multiple Sclerosis, support system

• Speaking the same language

  

  Despite seeing my oncologist, I craved a neurological sign of success.

  ChronicLibraryCD

  October 23, 2022

  HSCT, MS

  cancer, chemotherapy, Chronic Illness, Cleveland Clinic, doctors, HSCT, medical literacy, MS, Multiple Sclerosis, neurology, oncology

• Last night I made dinner…

  

  Life looks nothing like I imagined it would but last night I hit a few more milestones.

  ChronicLibraryCD

  October 12, 2022

  About Me, HSCT

  Chronic Illness, cooking, dinner table, family, happiness, HSCT, joy, life's moments, mom, MS, Multiple Sclerosis, sister

• Back to Work

  

  And just like that, 12 weeks expired and I am back to work full time. Life lately has been acclimating to this massive change.

  ChronicLibraryCD

  October 5, 2022

  HSCT, MS

  back to work, Chronic Illness, Cleveland Clinic, disability leave, fulltime work, HSCT, MS, Multiple Sclerosis

• How do you define health?

  

  Comparison is a ridiculous endeavor when it comes to defining health because most illness is invisible. As Theodore Roosevelt said, “comparison is the thief of joy.”

  ChronicLibraryCD

  September 7, 2022

  HSCT, MS

  chemotherapy, Chronic Illness, Cleveland Clinic, health, hospital stay, HSCT, MS, Multiple Sclerosis, recovery, well being

• Life Lately: September 1, 2022

  

  Today marks day +63. This has been the longest summer on record. It’s all new. There’s no planning. And I have to be fine with that.

  ChronicLibraryCD

  September 1, 2022

  About Me, HSCT, MS

  cane, chemotherapy, Chronic Illness, Cleveland Clinic, dining, friendship, grief, HSCT, mobility aid, MS, Multiple Sclerosis, physical therapy, reading, recovery, summer

• Finding a Swift Cure for People Like Me

  

  Science is badass and after what I’ve been through this year, anything is possible. What if your dollars help find a cure?

  ChronicLibraryCD

  August 30, 2022

  About Me, HSCT, MS

  cancer research, Chronic Illness, Cleveland Clinic, donations, friendship, fundraising, HSCT, MS, Multiple Sclerosis, research

• Guest Author: Mom’s Witness to Recovery

  

  Phase one for me was chemo. Phase two was stem-cell transplant. Phase three is recovery and we are now in the thick of it. The medical staff often reminds us that recovery will take a year. I might know that intellectually, but emotionally I want some quicker results.

  ChronicLibraryCD

  August 9, 2022

  Guest Post, HSCT, MS

  caregiver, chemotherapy, Chronic Illness, Cleveland Clinic, healing, HSCT, mom, MS, Multiple Sclerosis, parenting, recovery, support system

• The Struggle to Heal

  

  I’m physically healing and mentally trying to process that healing. I’m struggling each day. I’m ok, but healing is really hard.

  ChronicLibraryCD

  August 2, 2022

  HSCT, MS

  chemotherapy, Chronic Illness, depression, exhaustion, fatigue, help, HSCT, mental health, MS, Multiple Sclerosis

• When Work & Life Collide

  

  This post is a bit all over the place but I’m filled with so much gratitude for my employer, my colleagues and the incredible medical system that is Cleveland Clinic.

  ChronicLibraryCD

  July 23, 2022

  About Me, HSCT, MS

  chemotherapy, Chronic Illness, Cleveland Clinic, friendship, hospital stay, HSCT, MS, Multiple Sclerosis