Tag: travel
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Life & OT hacks that just make sense
After multiple bouts of paralysis, I’ve become well-acquainted with occupational therapy and hacking my life. Here are things I recommend for safety, staying active, mobility aids, home adjustments, organization, and cleanliness. These products improve my daily life and help ensure my continued independence.
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The Disability Tax
There is a disability tax that without invite, attaches to all aspects of your life. People don’t talk about this and probably, unless forced, don’t think about it either. I know I didn’t! There is a loss of personal agency and choice.
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Reflections on an Unexpected Year
I am letting go of anger. I release the illusion of control. I revel in possibility and the unknown, and I am learning to hold both joy and sadness, acceptance and striving for more, contentment and wanderlust — simultaneously. I am loved. I am safe. I am enough.
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Fernweh: My 2023 travels
Fernweh means an ache to get away and travel to a distant place. It literally translates to “distance-sickness.” For three years, I did not travel. I knew I missed travel; I just didn’t know how much until, with each trip this year, I found a bit of me.
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Convalescing by the sea: My trip to Guernsey
I’ve traveled the world and without a doubt, this vacation was the trip of a lifetime. Guernsey might just be the most beautiful, refreshing, soul soothing, healing, and magical place on earth.
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The change 6 months can bring
At the start of 2022, I had never heard of HSCT. A year post transplant, I’m ever so curious to see where I will be six months from now.
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The Me I Mourn
I have hours to think and to write, alone in my hospital bed. I find my mind wandering to the versions of me that are now lost; both from the past and also looking into the future.
My Chronic Library 