Hi, I’m Carolyn and My Chronic Library is a personal blog detailing my life and learnings of living with MS, my experience undergoing and recovering from an experimental bone marrow transplant (HSCT), my opinions and recommendations for navigating healthcare in the U.S., and all things reading and books.
I endeavor to provide lessons for the chronically ill and impossibly curious. I’m navigating disability in an ableist world and trying to make an impact by helping others through education and advocacy.
I’m a voracious reader, avid traveler, and singer of show tunes. Four years in means there’s a lot of content here. If you don’t fancy scrolling, ask me a question directly!
Read about my former self as well as my thoughts on releasing body shame and comparison in health.
LATEST POSTS
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My Complicated, Needy, Irrational, and Humbling Relationship
The doctor/patient relationship will never be equal. I need him, but I don’t want to need him. I am so lucky to have found him, but I wish I never met him. What a phenomenally unfair burden to place on another person.
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Understanding My Lost Anticipated History
I said, “I was healthy until the moment a doctor told me I wasn’t. And nothing prepares you for that.” He replied, “Carolyn, we are all one test away.” It’s cruel really, how your world changes in an instant but the effects are infinite.
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An Interview with my Former Neurologist
Listen to a one-on-one interview with my former neurologist and read about what I’ve learned in my dual role as a patient and employee of Cleveland Clinic. I reflect on my physical decline due to MS, the importance of advocating for oneself as a patient, and my heartfelt gratitude for the medical team I’ve partnered…
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Understanding Disability Disclosure in the Workplace
The disability experience is isolating, scary, and intimidating. While my experience is mine alone, I’ve learned a few things along the way. Disclosure, choosing when to share and who to trust, is multifaceted and there is no right answer. But a little planning is better than none.
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Life & OT hacks that just make sense
After multiple bouts of paralysis, I’ve become well-acquainted with occupational therapy and hacking my life. Here are things I recommend for safety, staying active, mobility aids, home adjustments, organization, and cleanliness. These products improve my daily life and help ensure my continued independence.
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My Chronic Library 