Hi, I’m Carolyn and My Chronic Library is a personal blog detailing my life and learnings of living with MS, my experience undergoing and recovering from an experimental bone marrow transplant (HSCT), my opinions and recommendations for navigating healthcare in the U.S., and all things reading and books.
I endeavor to provide lessons for the chronically ill and impossibly curious. I’m navigating disability in an ableist world and trying to make an impact by helping others through education and advocacy.
I’m a voracious reader, avid traveler, and singer of show tunes. Four years in means there’s a lot of content here. If you don’t fancy scrolling, ask me a question directly!
Read about my former self as well as my thoughts on releasing body shame and comparison in health.
LATEST POSTS
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Two Days of Testing
These days were brutal, emotional and totally worth it. The appointments, tests and blood draws are to ensure the rest of my body can withstand the chemo.
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The HSCT Process
Hope. I don’t use the word lightly. since my diagnosis nearly nine years ago I have waited to get worse and I’ve seen that come to fruition rapidly in the last three years. I know this is going to be hard but I am hopeful.
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Bone Marrow Transplant… What?
This is not a cure. The goal of hematopoietic stem cell transplant (HSCT) is to reset the immune system and stop inflammation that contributes to MS.
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Happy Birthday! You get MS.
After a four-hour MRI, a spinal tap, and countless neurological exams, I was officially diagnosed. I went from thinking I was a healthy and active woman to being told I now have a lifelong diagnosis for a disease with no cure.
DON’T MISS OUT ON MY MUSINGS!
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My Chronic Library 