Hi, I’m Carolyn and My Chronic Library is a personal blog detailing my life and learnings of living with MS, my experience undergoing and recovering from an experimental bone marrow transplant (HSCT), my opinions and recommendations for navigating healthcare in the U.S., and all things reading and books.
I endeavor to provide lessons for the chronically ill and impossibly curious. I’m navigating disability in an ableist world and trying to make an impact by helping others through education and advocacy.
I’m a voracious reader, avid traveler, and singer of show tunes. Four years in means there’s a lot of content here. If you don’t fancy scrolling, ask me a question directly!
Read about my former self as well as my thoughts on releasing body shame and comparison in health.
LATEST POSTS
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Dating & Doctors
I strongly believe finding the right doctor is akin to dating. It’s ok to not like your first doctor and play the field.
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Hospital Stay Packing List
I’ve compiled a list of a few purchases I recently made as I prepare for a month-long hospital stay for bone marrow transplant.
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Zzzzzzz: Sleep & MS
I have a body that can no longer push through and keep going. I’m physically incapable. When I don’t sleep — no matter the reason — my MS symptoms flare.
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What I’m Reading: April 2022
I read everything and my book changes with my mood. Here’s a recap of my April reads so far.
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HSCT Research & Resources
There is an indescribable feeling of connection and peace in talking to someone with your shared experience.
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Why I Write
I discovered, the more I opened up, the more the people in my life surprised me with their understanding and support. My family, friends, coworkers and kind Midwestern strangers continue to surprise me in ways I never imagined.
DON’T MISS OUT ON MY MUSINGS!
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My Chronic Library 