Hi, I’m Carolyn and My Chronic Library is a personal blog detailing my life and learnings of living with MS, my experience undergoing and recovering from an experimental bone marrow transplant (HSCT), my opinions and recommendations for navigating healthcare in the U.S., and all things reading and books.
I endeavor to provide lessons for the chronically ill and impossibly curious. I’m navigating disability in an ableist world and trying to make an impact by helping others through education and advocacy.
I’m a voracious reader, avid traveler, and singer of show tunes. Four years in means there’s a lot of content here. If you don’t fancy scrolling, ask me a question directly!
Read about my former self as well as my thoughts on releasing body shame and comparison in health.
LATEST POSTS
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Ableism and Universal Design
People with disabilities are the largest minority group in our nation. It is the only minority group that any person can join at any time. The ADA is the bare minimum, not the gold standard. Because adding accessibility options and being smart about design helps everyone.
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Book Lover’s Paradise: Reviews, Recommendations, and Must-Have Items
For better or worse, my personality is more than 50% comprised of the last book I read. I’ve read 55 books so far this year. Read on for a recent round up and some favorite reading accessories.
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My Village
We have all heard the phrase, “it takes a village,” but never has a phrase been more apt to encompass my life including my gratitude, my luck, my love of the street I live on and the friends and neighbors who have turned into chosen family.
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COVID, Paralysis & Deja Vu
Chronic illness is exhausting. When asked how I was doing via text message yesterday, I replied, “Equal parts fine and terrible.” Four years was a good run, but that nasty little bugger finally got me. I joined the masses and tested positive for COVID.
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The Not-So-Terrible Twos
Two years have passed since my stem cells were put back in my body to rebuild bone marrow and my immune system, it seems like a lifetime ago and yesterday all at once.
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That sounds like a female problem
I’ve learned through my four decades on this earth that the general consensus from medical professionals is that they just don’t know when it comes to women’s bodies, women’s health, women’s cycles, and women’s hormones. We’re too individual, complex, unique, tricky, hard, difficult, challenging, erratic, and unpredictable.
DON’T MISS OUT ON MY MUSINGS!
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My Chronic Library 