Hi, I’m Carolyn and My Chronic Library is a personal blog detailing my life and learnings of living with MS, my experience undergoing and recovering from HSCT, my opinions and recommendations for navigating healthcare in the U.S., and all things reading and books.
I endeavor to provide lessons for the chronically ill and impossibly curious. I’m navigating disability in an ableist world and trying to make an impact by helping others through education and advocacy.
I’m a voracious reader, avid traveler, and singer of show tunes.
Read about my former self as well as my thoughts on releasing body shame and comparison in health.
LATEST POSTS
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My Village
We have all heard the phrase, “it takes a village,” but never has a phrase been more apt to encompass my life including my gratitude, my luck, my love of the street I live on and the friends and neighbors who have turned into chosen family.
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COVID, Paralysis & Deja Vu
Chronic illness is exhausting. When asked how I was doing via text message yesterday, I replied, “Equal parts fine and terrible.” Four years was a good run, but that nasty little bugger finally got me. I joined the masses and tested positive for COVID.
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The Not-So-Terrible Twos
Two years have passed since my stem cells were put back in my body to rebuild bone marrow and my immune system, it seems like a lifetime ago and yesterday all at once.
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That sounds like a female problem
I’ve learned through my four decades on this earth that the general consensus from medical professionals is that they just don’t know when it comes to women’s bodies, women’s health, women’s cycles, and women’s hormones. We’re too individual, complex, unique, tricky, hard, difficult, challenging, erratic, and unpredictable.
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What I’m Reading: 2024 thus far
Am I bombarding you with book updates and recommendations? Making up for lost time? Moderately manic in my writing as of late? Obviously, yes. Check out my latest must reads for this year.
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How many therapists is too many?
After years of trial and error, I now have three individuals dedicated to different aspects of my mental health. In comparison to my other medical teams, three seems like a small number. Let me reiterate and say it loudly for those in the back row, MENTAL HEALTH DESERVES YOUR ATTENTION TOO!
DON’T MISS OUT ON MY MUSINGS!
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My Chronic Library 