Hi, I’m Carolyn and My Chronic Library is a personal blog detailing my life and learnings of living with MS, my experience undergoing and recovering from HSCT, my opinions and recommendations for navigating healthcare in the U.S., and all things reading and books.

I endeavor to provide lessons for the chronically ill and impossibly curious. I’m navigating disability in an ableist world and trying to make an impact by helping others through education and advocacy.

I’m a voracious reader, avid traveler, and singer of show tunes.

Read about my former self as well as my thoughts on releasing body shame and comparison in health.


LATEST POSTS


  • Chronic Illness-Doing OK-Surviving Barbie

    Chronic Illness-Doing OK-Surviving Barbie

    I wanted to be a success story, but I’m realizing I’m just me — unapologetically me. There is so much nuance in chronic illness; we live in the gray area and that unfortunately, is the hardest story to tell. But to me, that’s where the true story lies.

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  • Convalescing by the sea: My trip to Guernsey

    Convalescing by the sea: My trip to Guernsey

    I’ve traveled the world and without a doubt, this vacation was the trip of a lifetime. Guernsey might just be the most beautiful, refreshing, soul soothing, healing, and magical place on earth.

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  • The Mental Gymnastics of Chronic Illness

    The Mental Gymnastics of Chronic Illness

    I am a mess. But I’ve never been more excited to be messy. My physical and mental health are in constant flux, no two days are the same and it’s exhausting. I guess this is healing? Today, that’s what I’m telling myself.

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  • What I’m Reading (or read): Summer 2023

    What I’m Reading (or read): Summer 2023

    I was recently reminded that I have not shared my latest reads, trends, recommendations and more. I do apologize for my egregious error. Let me rectify this oversight immediately.

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  • What am I living for?

    What am I living for?

    My life is smaller and quieter than it used to be. I don’t have a plan. Maybe for the first time in my life, that’s ok.

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  • Memory, Time & Moments

    Memory, Time & Moments

    One year ago today, I checked-in to the hospital for an experimental bone marrow transplant.

    Read more

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