Hi, I’m Carolyn and My Chronic Library is a personal blog detailing my life and learnings of living with MS, my experience undergoing and recovering from HSCT, my opinions and recommendations for navigating healthcare in the U.S., and all things reading and books.
I endeavor to provide lessons for the chronically ill and impossibly curious. I’m navigating disability in an ableist world and trying to make an impact by helping others through education and advocacy.
I’m a voracious reader, avid traveler, and singer of show tunes.
Read about my former self as well as my thoughts on releasing body shame and comparison in health.
LATEST POSTS
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Mirror, mirror on the wall
When I look in the mirror, it’s like another person stares back at me. The person I see and the person I am are incongruous.
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The change 6 months can bring
At the start of 2022, I had never heard of HSCT. A year post transplant, I’m ever so curious to see where I will be six months from now.
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So did the transplant work?
Through tears of defeat and tears of joy, body degradation and elation, and one million new experiences, I’m happy, I’m content, I’ve found a small amount of peace. The future is full of possibility.
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Am I stable?
What was good news for my doctors was confusing and demoralizing news for me. While my MRIs were stable, I was declining and fast.
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Back to Start
I was prepared to feel like a lab rat in this process. I was not prepared to feel all alone or be buried in red tape and insurance denials. I was not prepared to have to start again.
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Rehab, Health Esteem & Other Musings
I will crawl, claw, and fight to improve my walk, to build strength, to be independent. I may have been kicked back to the starting line by shingles, but I will not stop trying.
DON’T MISS OUT ON MY MUSINGS!
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My Chronic Library 