Hi, I’m Carolyn and My Chronic Library is a personal blog detailing my life and learnings of living with MS, my experience undergoing and recovering from an experimental bone marrow transplant (HSCT), my opinions and recommendations for navigating healthcare in the U.S., and all things reading and books.
I endeavor to provide lessons for the chronically ill and impossibly curious. I’m navigating disability in an ableist world and trying to make an impact by helping others through education and advocacy.
I’m a voracious reader, avid traveler, and singer of show tunes. Four years in means there’s a lot of content here. If you don’t fancy scrolling, ask me a question directly!
Read about my former self as well as my thoughts on releasing body shame and comparison in health.
LATEST POSTS
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Movement, Energy & the Body
Movement – a word that holds so much joy, so much possibility and for me, sorrow and loss as well.
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Three Things My Doctors Said
I have three specific encounters with three extraordinary doctors that shaped who I am as a patient as well as what I know I need from the doctor/patient relationship.
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Positivity Free Zone
We aren’t supposed to be happy all the time, always productive. There is a place for darkness and sadness and despair.
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Reflecting Back & Looking Forward
I am six months post transplant and full of hope and gratitude. Take a moment to thank your beautiful, wonderous, amazing, incredible and unique body.
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Dear Kerry: a letter to my Captain
This is an open letter to my transplant nurse, my captain, my friend.
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Life Lately: December 5, 2022
I’m trying each day to get through the day. Short and sweet, that’s what it comes down to; doctor’s visits, vaccines, holidays and new beginnings.
DON’T MISS OUT ON MY MUSINGS!
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My Chronic Library 