Hi, I’m Carolyn and My Chronic Library is a personal blog detailing my life and learnings of living with MS, my experience undergoing and recovering from HSCT, my opinions and recommendations for navigating healthcare in the U.S., and all things reading and books.
I endeavor to provide lessons for the chronically ill and impossibly curious. I’m navigating disability in an ableist world and trying to make an impact by helping others through education and advocacy.
I’m a voracious reader, avid traveler, and singer of show tunes.
Read about my former self as well as my thoughts on releasing body shame and comparison in health.
LATEST POSTS
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The Me I Mourn
I have hours to think and to write, alone in my hospital bed. I find my mind wandering to the versions of me that are now lost; both from the past and also looking into the future.
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Guest Author: A Roller Coaster of Recovery
I assume by now you have read Carolyn’s new blogs about the month of February but I would like to sum it up in a few words: “What the hell?” As a parent, I just want to fix things.
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The F Word
F is for fall, one of those key medical metrics that hospitals care about. I’ve been forced to come to terms with recent falls and how they impact my health and care.
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Depths of Despair
My mobility is not me. I work every day to understand that simple sentence. But I write now, from a place of darkness, of loss, of profound grief.
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Movement, Energy & the Body
Movement – a word that holds so much joy, so much possibility and for me, sorrow and loss as well.
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Three Things My Doctors Said
I have three specific encounters with three extraordinary doctors that shaped who I am as a patient as well as what I know I need from the doctor/patient relationship.
DON’T MISS OUT ON MY MUSINGS!
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My Chronic Library 