Category: HSCT
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I’m Home
I am 15 days post transplant and I’m home. Even knowing I have a year-long recovery ahead of me that will be filled with ups and downs, I’m filled to the brim with hope.
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Life Lately: July 10, 2022
I’m not myself regarding all things: mobility, energy, wit, clarity of mind, anything. But I’m getting there.
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Coffee Conversations: Death and Dying
He said, “Are you ok with death? If you died tomorrow how would you feel?” I answered “no” rather emphatically.
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Guest Author: We Can Do Hard Things
Every day is a roller coaster, literally. She can go from chatting and pink, to gray and moaning within a few minutes depending on the drug they have given her.
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Chemo Around the Clock
The last three days have been chemo-filled. In transplant language they account for days -6, -5 and -4.
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Admission
Unexpectedly, I got a hospital bed! With 36 hours notice, I was admitted and beginning the next phase of HSCT.
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Life Lately: June 21, 2022
The short and sweet update is that I’m better this week — whatever that means. As I wait for my admission date, I keep thinking, “but what if it all works out?”
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The Waiting Game & Disappointment
I feel a bit like Beetlejuice in the waiting room of the afterlife. He’s holding the number 9,998,383,750,000 and the “Now Serving” sign says 3.
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Hospital Admission: A Moveable Date
I found out last Thursday that my inpatient date is moveable. I’m allowed to understand the “why” and still be disappointed.
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After Chemo: Indispensable Items
This is what I needed to survive basic daily life after chemotherapy and what I now know I need moving forward to make me feel human in the midst of chaos and a broken body.
My Chronic Library 