Category: MS
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When Work & Life Collide
This post is a bit all over the place but I’m filled with so much gratitude for my employer, my colleagues and the incredible medical system that is Cleveland Clinic.
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Guest Author: My MS sister-in-arms, Marcella
I have a friend who is so wonderful, so unique, so artistic and so talented she defies description. We share many things but we both have MS and were diagnosed within the same year. I asked for her perspective.
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I’m Home
I am 15 days post transplant and I’m home. Even knowing I have a year-long recovery ahead of me that will be filled with ups and downs, I’m filled to the brim with hope.
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Life Lately: July 10, 2022
I’m not myself regarding all things: mobility, energy, wit, clarity of mind, anything. But I’m getting there.
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Coffee Conversations: Death and Dying
He said, “Are you ok with death? If you died tomorrow how would you feel?” I answered “no” rather emphatically.
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Guest Author: We Can Do Hard Things
Every day is a roller coaster, literally. She can go from chatting and pink, to gray and moaning within a few minutes depending on the drug they have given her.
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Chemo Around the Clock
The last three days have been chemo-filled. In transplant language they account for days -6, -5 and -4.
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Admission
Unexpectedly, I got a hospital bed! With 36 hours notice, I was admitted and beginning the next phase of HSCT.
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Life Lately: June 21, 2022
The short and sweet update is that I’m better this week — whatever that means. As I wait for my admission date, I keep thinking, “but what if it all works out?”
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The Waiting Game & Disappointment
I feel a bit like Beetlejuice in the waiting room of the afterlife. He’s holding the number 9,998,383,750,000 and the “Now Serving” sign says 3.
My Chronic Library 