Curious about MS, HSCT, or navigating disability?
MS sucks. On that, I think we can all agree but there are tips, tricks, and products that can make some things a bit easier and I’m here to share what I’ve learned. Peruse the categories below and get to know me over the last few years as I underwent HSCT. What started as a way to share my HSCT journey, morphed into a way to share my mental and physical changes in life. This is my story. Thank you for reading along.
I underwent HSCT beginning in May 2022 and am almost two years out from transplant. In some ways it feels I’ve lived an entire life and in some ways, it feels like yesterday. If you’re interested in the process, below are posts that may help you prepare or support someone you love with a new diagnosis, HSCT, living with disability, travel and more.
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HSCT
- Bone Marrow Transplant… What?
- The HSCT Process
- Two Days of Testing
- HSCT Research & Resources
- 7T MRI & Research for MS
- Update on the 7T MRI
- And We’re Off! (catheter placement)
- 911 & My Hospital Admission
- Chemotherapy & Releasing Body Shame
- Stem Cell Harvest
- Doctor’s Orders: Rest & Relaxation
- Hair Loss
- Hospital Admission: A Moveable Date
- The Waiting Game & Disappointment
- Admission
- Chemo Around the Clock
- Guest Post: We Can Do Hard Things
- I’m Home
- Guest Author: Mom’s Witness to Recovery
- The Struggle to Heal
- Speaking the same language
- Last night I made dinner…
- Back to Work
- HSCT Q&A
- From OR to AND: A New Place in Healing
- Mirror, mirror on the wall
- So did the transplant work?
MS
- Happy Birthday! You get MS.
- Zzzzzzz: Sleep & MS
- Why I Write
- Guest Author: My MS sister-in-arms, Marcella
- The change 6 months can bring
Chronic Illness & Relationships
- In sickness and in health… or not
- Meaningless Vows
- Tips for Divorce During an Illness or Health Crisis
Healthcare in the U.S.
- Three Things My Doctors Said
- Speak Up: I will not go quietly into the night
- Speak Up: The pen is mightier than the sword
- Speak Up: The ‘not it’ mentality
- Speak Up: It’s pay day
- Am I stable?
- Dear Kerry: a letter to my Captain
- Rehab, Health Esteem & Other Musings
- Back to Start
- Dating & Doctors
Chronic Illness & Work
Living with a Disability
- The Me I Mourn
- The Disability Tax
- Chronic Illness-Doing OK-Surviving Barbie
- The F Word
- What am I living for?
- Memory, Time & Moments
- Coffee Conversations: Death and Dying
- How do you define health?
- Emotional Volatility
- The Mental Gymnastics of Chronic Illness
- Positivity Free Zone
- Depths of Despair
Travel
- Reflections on an Unexpected Year
- Fernweh: My 2023 travels
- Convalescing by the sea: My trip to Guernsey
All Other Musings
- My big list of how to help (because we need it)
- Life Lately: June 21, 2022
- Life Lately: July 10, 2022
- Life Lately: September 1, 2022
- Guest Author: Notes from the Mom
- Guest Author: How To Provide Support
- Prepping My Freezer
- Guest Author: Observations from Chemotherapy
- Hospital Stay Packing List
- After Chemo: Indispensable Items
- Finding a Swift Cure for People Like Me

