Tag: advocacy
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My Complicated, Needy, Irrational, and Humbling Relationship
The doctor/patient relationship will never be equal. I need him, but I don’t want to need him. I am so lucky to have found him, but I wish I never met him. What a phenomenally unfair burden to place on another person.
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An Interview with my Former Neurologist
Listen to a one-on-one interview with my former neurologist and read about what I’ve learned in my dual role as a patient and employee of Cleveland Clinic. I reflect on my physical decline due to MS, the importance of advocating for oneself as a patient, and my heartfelt gratitude for the medical team I’ve partnered…
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Ableism and Universal Design
People with disabilities are the largest minority group in our nation. It is the only minority group that any person can join at any time. The ADA is the bare minimum, not the gold standard. Because adding accessibility options and being smart about design helps everyone.
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How many therapists is too many?
After years of trial and error, I now have three individuals dedicated to different aspects of my mental health. In comparison to my other medical teams, three seems like a small number. Let me reiterate and say it loudly for those in the back row, MENTAL HEALTH DESERVES YOUR ATTENTION TOO!
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Speak Up: I will not go quietly into the night
This is part one of my episodic retelling of battles fought, questions asked, and lessons learned this calendar year. I fought insurance, my employer, my care team, and time. I fight for those without a voice, a safety net, or a platform. I have a loud voice, and I will be heard.
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The F Word
F is for fall, one of those key medical metrics that hospitals care about. I’ve been forced to come to terms with recent falls and how they impact my health and care.
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Three Things My Doctors Said
I have three specific encounters with three extraordinary doctors that shaped who I am as a patient as well as what I know I need from the doctor/patient relationship.
My Chronic Library 