Tag: doctors

• Speak Up: I will not go quietly into the night

  

  This is part one of my episodic retelling of battles fought, questions asked, and lessons learned this calendar year. I fought insurance, my employer, my care team, and time. I fight for those without a voice, a safety net, or a platform. I have a loud voice, and I will be heard.

  ChronicLibraryCD

  November 11, 2023

  HSCT, MS

  advocacy, Chronic Illness, Cleveland Clinic, doctors, hospital stay, HSCT, insurance, MS, Multiple Sclerosis, patient advocacy, speak up

• The Mental Gymnastics of Chronic Illness

  

  I am a mess. But I’ve never been more excited to be messy. My physical and mental health are in constant flux, no two days are the same and it’s exhausting. I guess this is healing? Today, that’s what I’m telling myself.

  ChronicLibraryCD

  August 28, 2023

  HSCT, MS

  Chronic Illness, Cleveland Clinic, doctors, healing, HSCT, mental health, mental illness, MS, Multiple Sclerosis, neurology, trauma

• Am I stable?

  

  What was good news for my doctors was confusing and demoralizing news for me. While my MRIs were stable, I was declining and fast.

  ChronicLibraryCD

  April 25, 2023

  HSCT, MS

  Chronic Illness, Cleveland Clinic, communication, doctors, HSCT, MS, Multiple Sclerosis, neurodegeneration

• Speaking the same language

  

  Despite seeing my oncologist, I craved a neurological sign of success.

  ChronicLibraryCD

  October 23, 2022

  HSCT, MS

  cancer, chemotherapy, Chronic Illness, Cleveland Clinic, doctors, HSCT, medical literacy, MS, Multiple Sclerosis, neurology, oncology

• Dating & Doctors

  

  I strongly believe finding the right doctor is akin to dating. It’s ok to not like your first doctor and play the field.

  ChronicLibraryCD

  April 14, 2022

  About Me, HSCT, MS

  care team, Chronic Illness, DMT, doctors, HSCT, MS, Multiple Sclerosis, New diagnosis, second opinion