Tag: hospital stay
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Speak Up: I will not go quietly into the night
This is part one of my episodic retelling of battles fought, questions asked, and lessons learned this calendar year. I fought insurance, my employer, my care team, and time. I fight for those without a voice, a safety net, or a platform. I have a loud voice, and I will be heard.
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Ann Patchett Made My Mind Race
There are books that are fun to read, easy to read, escapism. Then there are books that showcase the brilliance of the writer, the mastery that is writing. Thank you, Ann Patchett for shaping my feelings into clear ideas, for reigniting memories and nostalgic reverie, and for being an unparalleled storyteller.
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Chronic Illness-Doing OK-Surviving Barbie
I wanted to be a success story, but I’m realizing I’m just me — unapologetically me. There is so much nuance in chronic illness; we live in the gray area and that unfortunately, is the hardest story to tell. But to me, that’s where the true story lies.
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Memory, Time & Moments
One year ago today, I checked-in to the hospital for an experimental bone marrow transplant.
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The change 6 months can bring
At the start of 2022, I had never heard of HSCT. A year post transplant, I’m ever so curious to see where I will be six months from now.
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So did the transplant work?
Through tears of defeat and tears of joy, body degradation and elation, and one million new experiences, I’m happy, I’m content, I’ve found a small amount of peace. The future is full of possibility.
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Back to Start
I was prepared to feel like a lab rat in this process. I was not prepared to feel all alone or be buried in red tape and insurance denials. I was not prepared to have to start again.
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Rehab, Health Esteem & Other Musings
I will crawl, claw, and fight to improve my walk, to build strength, to be independent. I may have been kicked back to the starting line by shingles, but I will not stop trying.
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The F Word
F is for fall, one of those key medical metrics that hospitals care about. I’ve been forced to come to terms with recent falls and how they impact my health and care.
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Depths of Despair
My mobility is not me. I work every day to understand that simple sentence. But I write now, from a place of darkness, of loss, of profound grief.
My Chronic Library 