Tag: patient advocacy
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COVID, Paralysis & Deja Vu
Chronic illness is exhausting. When asked how I was doing via text message yesterday, I replied, “Equal parts fine and terrible.” Four years was a good run, but that nasty little bugger finally got me. I joined the masses and tested positive for COVID.
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Speak Up: I will not go quietly into the night
This is part one of my episodic retelling of battles fought, questions asked, and lessons learned this calendar year. I fought insurance, my employer, my care team, and time. I fight for those without a voice, a safety net, or a platform. I have a loud voice, and I will be heard.
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Coffee Conversations: Death and Dying
He said, “Are you ok with death? If you died tomorrow how would you feel?” I answered “no” rather emphatically.
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HSCT Research & Resources
There is an indescribable feeling of connection and peace in talking to someone with your shared experience.
My Chronic Library 