Hi, I’m Carolyn and My Chronic Library is a personal blog detailing my life and learnings of living with MS, my experience undergoing and recovering from an experimental bone marrow transplant (HSCT), my opinions and recommendations for navigating healthcare in the U.S., and all things reading and books.
I endeavor to provide lessons for the chronically ill and impossibly curious. I’m navigating disability in an ableist world and trying to make an impact by helping others through education and advocacy.
I’m a voracious reader, avid traveler, and singer of show tunes. Four years in means there’s a lot of content here. If you don’t fancy scrolling, ask me a question directly!
Read about my former self as well as my thoughts on releasing body shame and comparison in health.
LATEST POSTS
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Back to Work
And just like that, 12 weeks expired and I am back to work full time. Life lately has been acclimating to this massive change.
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How do you define health?
Comparison is a ridiculous endeavor when it comes to defining health because most illness is invisible. As Theodore Roosevelt said, “comparison is the thief of joy.”
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Life Lately: September 1, 2022
Today marks day +63. This has been the longest summer on record. It’s all new. There’s no planning. And I have to be fine with that.
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Finding a Swift Cure for People Like Me
Science is badass and after what I’ve been through this year, anything is possible. What if your dollars help find a cure?
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What I’m Reading: August 2022
I’m way late to the game, but I got this recap in before the end of the month so it still counts!
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Guest Author: Mom’s Witness to Recovery
Phase one for me was chemo. Phase two was stem-cell transplant. Phase three is recovery and we are now in the thick of it. The medical staff often reminds us that recovery will take a year. I might know that intellectually, but emotionally I want some quicker results.
DON’T MISS OUT ON MY MUSINGS!
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My Chronic Library 