Hi, I’m Carolyn and My Chronic Library is a personal blog detailing my life and learnings of living with MS, my experience undergoing and recovering from an experimental bone marrow transplant (HSCT), my opinions and recommendations for navigating healthcare in the U.S., and all things reading and books.

I endeavor to provide lessons for the chronically ill and impossibly curious. I’m navigating disability in an ableist world and trying to make an impact by helping others through education and advocacy.

I’m a voracious reader, avid traveler, and singer of show tunes. Four years in means there’s a lot of content here. If you don’t fancy scrolling, ask me a question directly!

Read about my former self as well as my thoughts on releasing body shame and comparison in health.


LATEST POSTS


  • The Struggle to Heal

    The Struggle to Heal

    I’m physically healing and mentally trying to process that healing. I’m struggling each day. I’m ok, but healing is really hard.

    Read more

  • When Work & Life Collide

    When Work & Life Collide

    This post is a bit all over the place but I’m filled with so much gratitude for my employer, my colleagues and the incredible medical system that is Cleveland Clinic.

    Read more

  • Guest Author: My MS sister-in-arms, Marcella

    Guest Author: My MS sister-in-arms, Marcella

    I have a friend who is so wonderful, so unique, so artistic and so talented she defies description. We share many things but we both have MS and were diagnosed within the same year. I asked for her perspective.

    Read more

  • I’m Home

    I’m Home

    I am 15 days post transplant and I’m home. Even knowing I have a year-long recovery ahead of me that will be filled with ups and downs, I’m filled to the brim with hope.

    Read more

  • What I’m Reading: July 2022

    What I’m Reading: July 2022

    June was fast and furious reading hard cover books, e-books and audio, one after the other. It felt like finding myself again or returning home.

    Read more

  • Life Lately: July 10, 2022

    Life Lately: July 10, 2022

    I’m not myself regarding all things: mobility, energy, wit, clarity of mind, anything. But I’m getting there.

    Read more

DON’T MISS OUT ON MY MUSINGS!

Sign up to get notified about updates.