Hi, I’m Carolyn and My Chronic Library is a personal blog detailing my life and learnings of living with MS, my experience undergoing and recovering from an experimental bone marrow transplant (HSCT), my opinions and recommendations for navigating healthcare in the U.S., and all things reading and books.
I endeavor to provide lessons for the chronically ill and impossibly curious. I’m navigating disability in an ableist world and trying to make an impact by helping others through education and advocacy.
I’m a voracious reader, avid traveler, and singer of show tunes. Four years in means there’s a lot of content here. If you don’t fancy scrolling, ask me a question directly!
Read about my former self as well as my thoughts on releasing body shame and comparison in health.
LATEST POSTS
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Coffee Conversations: Death and Dying
He said, “Are you ok with death? If you died tomorrow how would you feel?” I answered “no” rather emphatically.
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Guest Author: We Can Do Hard Things
Every day is a roller coaster, literally. She can go from chatting and pink, to gray and moaning within a few minutes depending on the drug they have given her.
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Chemo Around the Clock
The last three days have been chemo-filled. In transplant language they account for days -6, -5 and -4.
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Life Lately: June 21, 2022
The short and sweet update is that I’m better this week — whatever that means. As I wait for my admission date, I keep thinking, “but what if it all works out?”
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The Waiting Game & Disappointment
I feel a bit like Beetlejuice in the waiting room of the afterlife. He’s holding the number 9,998,383,750,000 and the “Now Serving” sign says 3.
DON’T MISS OUT ON MY MUSINGS!
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My Chronic Library 