Hi, I’m Carolyn and My Chronic Library is a personal blog detailing my life and learnings of living with MS, my experience undergoing and recovering from HSCT, my opinions and recommendations for navigating healthcare in the U.S., and all things reading and books.
I endeavor to provide lessons for the chronically ill and impossibly curious. I’m navigating disability in an ableist world and trying to make an impact by helping others through education and advocacy.
I’m a voracious reader, avid traveler, and singer of show tunes.
Read about my former self as well as my thoughts on releasing body shame and comparison in health.
LATEST POSTS
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Chemo Around the Clock
The last three days have been chemo-filled. In transplant language they account for days -6, -5 and -4.
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Life Lately: June 21, 2022
The short and sweet update is that I’m better this week — whatever that means. As I wait for my admission date, I keep thinking, “but what if it all works out?”
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The Waiting Game & Disappointment
I feel a bit like Beetlejuice in the waiting room of the afterlife. He’s holding the number 9,998,383,750,000 and the “Now Serving” sign says 3.
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Hospital Admission: A Moveable Date
I found out last Thursday that my inpatient date is moveable. I’m allowed to understand the “why” and still be disappointed.
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After Chemo: Indispensable Items
This is what I needed to survive basic daily life after chemotherapy and what I now know I need moving forward to make me feel human in the midst of chaos and a broken body.
DON’T MISS OUT ON MY MUSINGS!
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My Chronic Library 