Hi, I’m Carolyn and My Chronic Library is a personal blog detailing my life and learnings of living with MS, my experience undergoing and recovering from an experimental bone marrow transplant (HSCT), my opinions and recommendations for navigating healthcare in the U.S., and all things reading and books.
I endeavor to provide lessons for the chronically ill and impossibly curious. I’m navigating disability in an ableist world and trying to make an impact by helping others through education and advocacy.
I’m a voracious reader, avid traveler, and singer of show tunes. Four years in means there’s a lot of content here. If you don’t fancy scrolling, ask me a question directly!
Read about my former self as well as my thoughts on releasing body shame and comparison in health.
LATEST POSTS
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Update on the 7T MRI
Research is important to further our understanding and treatment of disease, but this scan was brutal. Would I do it again for research? Yes. Was it “well tolerated” as they say in medicine? Decidedly no.
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What I’m Reading: May 2022
Get yourself a friend who knows you, cares about you AND brings coffee and books on a Saturday morning. Here’s a recap of my latest picks.
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Emotional Volatility
I’m ok… I think I’m ok… well, maybe I’m not ok. Everything feels too heavy, too important, too intense right now. I’m productive and high functioning, but I guess my goal in writing this is to say it’s ok not to be. Just be.
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7T MRI & Research for MS
Cleveland Clinic is one of about 50 institutions worldwide with a 7T MRI — and one of a select few that use it in close relation with an active hospital. And I’m getting one.
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Guest Author: How To Provide Support
No matter the situation, friendships change and evolve. The question is, how much are you open to changing and evolving with them?
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My Favorite Books
Here are a few of my favorite books of all time. I recommend them without hesitation and love each and every one.
DON’T MISS OUT ON MY MUSINGS!
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My Chronic Library 