Tag: Cleveland Clinic

• I’m Home

  

  I am 15 days post transplant and I’m home. Even knowing I have a year-long recovery ahead of me that will be filled with ups and downs, I’m filled to the brim with hope.

  ChronicLibraryCD

  July 15, 2022

  HSCT, MS

  blessing, chemotherapy, Chronic Illness, Cleveland Clinic, hospital stay, HSCT, HSCT warrior, MS, Multiple Sclerosis, stem cell transplant, support

• Life Lately: July 10, 2022

  

  I’m not myself regarding all things: mobility, energy, wit, clarity of mind, anything. But I’m getting there.

  ChronicLibraryCD

  July 10, 2022

  HSCT, MS

  chemotherapy, Chronic Illness, Cleveland Clinic, hospital stay, HSCT, MS, Multiple Sclerosis

• Coffee Conversations: Death and Dying

  

  He said, “Are you ok with death? If you died tomorrow how would you feel?” I answered “no” rather emphatically.

  ChronicLibraryCD

  July 2, 2022

  About Me, HSCT, MS

  Chronic Illness, Cleveland Clinic, death, dying, HSCT, living will, medical wishes, MS, Multiple Sclerosis, organ donation, patient advocacy, power of attorney

• Guest Author: We Can Do Hard Things

  

  Every day is a roller coaster, literally. She can go from chatting and pink, to gray and moaning within a few minutes depending on the drug they have given her.

  ChronicLibraryCD

  June 28, 2022

  Guest Post, HSCT, MS

  best friends, chemotherapy, Chronic Illness, Cleveland Clinic, friendship, hospital admission, hospital stay, HSCT, MS, Multiple Sclerosis, roller coaster

• Chemo Around the Clock

  

  The last three days have been chemo-filled. In transplant language they account for days -6, -5 and -4.

  ChronicLibraryCD

  June 26, 2022

  HSCT, MS

  BMT, Bone Marrow Transplant, chemo, chemotherapy, Chronic Illness, Cleveland Clinic, hospital stay, HSCT, MS, Multiple Sclerosis

• Admission

  

  Unexpectedly, I got a hospital bed! With 36 hours notice, I was admitted and beginning the next phase of HSCT.

  ChronicLibraryCD

  June 24, 2022

  HSCT, MS

  chemotherapy, Chronic Illness, Cleveland Clinic, hospital admission, HSCT, HSCTwarrior, MS, Multiple Sclerosis

• The Waiting Game & Disappointment

  

  I feel a bit like Beetlejuice in the waiting room of the afterlife. He’s holding the number 9,998,383,750,000 and the “Now Serving” sign says 3.

  ChronicLibraryCD

  June 14, 2022

  HSCT, MS

  anger, chemotherapy, Chronic Illness, Cleveland Clinic, disappointment, friendship, hospital admission, hospital stay, HSCT, MS, Multiple Sclerosis

• Hospital Admission: A Moveable Date

  

  I found out last Thursday that my inpatient date is moveable. I’m allowed to understand the “why” and still be disappointed.

  ChronicLibraryCD

  June 7, 2022

  HSCT, MS

  anxiety, chemotherapy, Chronic Illness, Cleveland Clinic, fear, hospital admission, HSCT, MS, Multiple Sclerosis, nursing shortage

• Guest Author: Notes from the Mom

  

  No matter my age, when things get rough, I want my mom. I asked her to write about her thoughts and feelings for other moms and caregivers.

  ChronicLibraryCD

  June 2, 2022

  Guest Post, HSCT, MS

  chemotherapy, Chronic Illness, Cleveland Clinic, family, HSCT, mom, mom and daughter, MS, Multiple Sclerosis, New diagnosis, support

• Doctor’s Orders: Rest & Relaxation

  

  My soul focus until I’m admitted for my month-long stay in a few weeks, is rest and relaxation.

  ChronicLibraryCD

  May 27, 2022

  HSCT, MS

  Chronic Illness, Cleveland Clinic, HSCT, HSCT warrior, MS, Multiple Sclerosis