Hi, I’m Carolyn and My Chronic Library is a personal blog detailing my life and learnings of living with MS, my experience undergoing and recovering from an experimental bone marrow transplant (HSCT), my opinions and recommendations for navigating healthcare in the U.S., and all things reading and books.
I endeavor to provide lessons for the chronically ill and impossibly curious. I’m navigating disability in an ableist world and trying to make an impact by helping others through education and advocacy.
I’m a voracious reader, avid traveler, and singer of show tunes. Four years in means there’s a lot of content here. If you don’t fancy scrolling, ask me a question directly!
Read about my former self as well as my thoughts on releasing body shame and comparison in health.
LATEST POSTS
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The Waiting Game & Disappointment
I feel a bit like Beetlejuice in the waiting room of the afterlife. He’s holding the number 9,998,383,750,000 and the “Now Serving” sign says 3.
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Hospital Admission: A Moveable Date
I found out last Thursday that my inpatient date is moveable. I’m allowed to understand the “why” and still be disappointed.
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After Chemo: Indispensable Items
This is what I needed to survive basic daily life after chemotherapy and what I now know I need moving forward to make me feel human in the midst of chaos and a broken body.
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What I’m Reading: June 2022
Books and reading are my escape but especially from emotional turmoil and difficult times.
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Guest Author: Notes from the Mom
No matter my age, when things get rough, I want my mom. I asked her to write about her thoughts and feelings for other moms and caregivers.
DON’T MISS OUT ON MY MUSINGS!
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My Chronic Library 