Hi, I’m Carolyn and My Chronic Library is a personal blog detailing my life and learnings of living with MS, my experience undergoing and recovering from an experimental bone marrow transplant (HSCT), my opinions and recommendations for navigating healthcare in the U.S., and all things reading and books.
I endeavor to provide lessons for the chronically ill and impossibly curious. I’m navigating disability in an ableist world and trying to make an impact by helping others through education and advocacy.
I’m a voracious reader, avid traveler, and singer of show tunes. Four years in means there’s a lot of content here. If you don’t fancy scrolling, ask me a question directly!
Read about my former self as well as my thoughts on releasing body shame and comparison in health.
LATEST POSTS
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Doctor’s Orders: Rest & Relaxation
My soul focus until I’m admitted for my month-long stay in a few weeks, is rest and relaxation.
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Stem Cell Harvest
On Monday of this week I reported to Taussig for apheresis or the less fancy term, stem cell harvest to capture my future immune system.
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911 & My Hospital Admission
I’m an overthinker by nature. There is a huge difference between planning and preparation and being in the thick of it. I’m in it. I’m living it. It’s my reality.
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Guest Author: Observations from Chemotherapy
Wednesday was a hard day, and I was just an observer and a pack mule. My perspective is one of friend, caregiver and all-around sassy, judgement-filled short person.
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And We’re Off!
Yesterday I started my day with labs and an appointment with my oncologist before heading to a different location for the insertion of my chest catheter in preparation for HSCT.
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Prepping My Freezer
I’ve spent the weeks leading up to my stem cell transplant harvest prepping my freezer. My increased fatigue and decreased mobility and stability force me to be selective what I cook and when.
DON’T MISS OUT ON MY MUSINGS!
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My Chronic Library 